HPP Registry TM

The HPP Registry Scientific Advisory Board (SAB) is a collaborative scientific board and an advocacy group for the HPP Registry. Membership includes external clinical experts and one Alexion medical representative.

The overall objectives of the SAB are to:
  • Advise the Alexion HPP Registry Leadership Team in the medical oversight of the HPP Registry
  • Identify and prioritize medical questions related to knowledge gaps in hypophosphatasia (HPP) and advise on the parameters to address these questions
  • Review collected data and provide clinical interpretation and analysis
  • Define a decision framework for the review and approval of requests for consideration of analyses of data from the HPP Registry
  • Participate and provide support, as appropriate, in the development of publications, including congress submissions/presentations

SAB members are compensated by Alexion for their services related to the SAB.

advisory board