Patient Organizations
Hypophosphatasie Deutschland e.V.
Hypophosphatasie Deutschland e.V. (HPP e.V.) is a Germany based non-profit association that aims to educate the public and medical professionals about hypophosphatasia, support affected families, and aid research into therapies.Hypophosphatasie Europe
Hypophosphatasie Europe is an association based in France that was founded in 2004 by a patient with hypophosphatasia. Their aim is to support patients and their families as well as monitor and support hypophosphatasia research.Soft Bones
Soft Bones is 501(c)3 non-profit, US-based patient advocacy group dedicated to the community of patients, caregivers and families living with hypophosphatasia. Their mission is to provide valuable information, education and support for people living with hypophosphatasia (HPP), their families and caregivers. The Foundation promotes research of this rare bone disease through awareness and fundraising efforts.AERyOH
AERyOH is a non-profit association in Spain that aims to unite and support patients affected by inherited rickets or osteomalacia as well as their families and caregivers.Metabolic Support UK
Metabolic Support UK is a patient organization that aims to support families, raise awareness, and fund research for treatments and cures for those affected by inherited metabolic disorders.The advocacy and support resources listed above are independent, nonprofit patient service organizations. Their listing on this website does not imply endorsement.