If you have any questions about the HPP Registry please contact
Alexion Clinical Trials via email at ClinicalTrials@alexion.com

Alexion Pharmaceuticals, Inc. (Alexion) is the sponsor of the HPP Registry, the collection and management of data, and the analyses, presentation, and publication of the HPP Registry data. In addition, the HPP Registry will be overseen by a Scientific Board of Advisors, comprised of physicians involved in the research or care of patients with HPP. The Scientific Board of Advisors will collaborate with the sponsor to define the scientific direction of the HPP Registry, and support analysis and publication of information about the disease and its treatment.